EU Funding Programme

Rare 2030 – A Participatory Foresight Study for Policy-Making Rare Diseases

Rare 2030 is a two-year project, led by a research team, but using inclusive methods to promote a focus on EU added value. The purpose of the pilot project is to propose sustainable policy scenarios in the field of rare diseases for the period 2020-2030 and to address challenges and opportunities up until 2030 in a comprehensive and innovative manner, with particular emphasis on limited competences at EU level.